Author & speaker

Ira Schiwek

I speak and write about living with autoimmune disease.

Book Ira as a speaker For patients

Featured in

ARD Gesund
ProSieben taff
BILD der FRAU
Psychologie Heute
EDITION F

Ira Schiwek smiling in a pink striped blouse

About me

Patient, educator & encourager

Mum, social worker, living with Sjögren’s and lupus. Today I talk about it openly so nobody feels alone.

Speaking

Talks, panels and conversations

The patient’s perspective on stage: honest and approachable.

Medical gaslighting
Living with autoimmune disease
Chronically ill and a mum
Self-care
Patient communication

Formats: Keynote · Panel · Reading · Workshop · Interview & talk

Hear me speak

Things we don’t want to hear anymore World Rheumatism Day 2025
Gender medicine: chronically ill as a woman World Rheumatism Day 2025

Stages & appearances

2026 Novartis International Sjögren’s Disease Patient Council Paris
2026 Patient day for World Lupus Day Berlin
2025 & 2026 Virtual Lupus Day for patients (GSK) online
2025 Female Future Force Day (EDITION F) Berlin
2025 World Rheumatism Day (Novartis) video talks
2024 Women’s health summit (BILD der FRAU)

Press, TV & podcasts

Video talk World Rheumatism Day 2025: video talks on Sjögren’s and gender medicine Novartis
TV ARD Gesund: medical gaslighting ARD Gesund
TV taff: when women aren’t taken seriously ProSieben
Podcast SR 1 podcast “Schicksal”: autoimmune disease SR 1 / ARD
Article Medical Gaslighting ↗ BILD der FRAU (German)
Interview Diese Hoffnung setze ich in die Forschung ↗ Studien wirken (German)
Podcast Chronisch gut ↗ Podcast on chronic illness (German)

Book Ira for your event Request an interview

For patients

You are not alone

In a conversation with me or in my book: support for your everyday life.

You’ve just been diagnosed and don’t know what comes next?
You feel your illness is running your life?
You want to change something but don’t know where to start?

Your 44 minute space

Your questions, my impulses

44 minutes for your questions and my experience. Not medical advice, but someone who understands. In German.

€44 per session

Request a session

Work with me

Raising awareness together

For event organisers, media, associations and healthcare companies.

Talks & panels
Readings
Press & writing
Patient communication

Worked with

Novartis
GSK
Merck
Roche
Sunday Natural
Kapten & Son
Carnium Botanicals
heine
KoRo
Bioturm
apo.com
Orthomol

Discuss a partnership

Autoimmune Balance Club

On Instagram I share my everyday life with Sjögren’s and lupus, honestly and unfiltered. Patients swap experiences here and encourage each other. For health brands, it is a community that pays close attention.

Follow on Instagram ↗ Request the media kit

7.7K: followers
5%: engagement rate

As of: media kit 2025

Contact

Get in touch

I look forward to your message and reply personally.